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      What is ME

      ME stands for Myalgic Encephalomyelitis.
      Benign Myalgic Encephalomyelitis (ME)/Post Viral Fatigue Syndrome (PVFS) is a multisystem, complex, acquired illness with symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. ME/PVFS has been classified as a neurological disorder in the World Health Organisation's International Classification of Diseases since 1969 (ICD 10 G93.3). Since 1992, the term "Chronic Fatigue Syndrome" (CFS) has been included in the Alphabetical Index and indexed to G93.3.

      The Chief Medical Officer's Report on the subject of CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) issued in January 2002 recognises that "CFS/ME should be classed as a chronic condition with long term effects on health, alongside other illnesses such as multiple sclerosis and motor neurone disease

      To date there is no known specific medical diagnostic test to determine or confirm a correct diagnosis nor is there any specific treatment for this condition.

      >What is ME? What is CFS? >Guidelines for ME IiMER Leaflet

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      Our annual international Conferences and research Colloquiums are designed to bring together researchers, clinicians, patient groups and patients/carers in order to make progress in research into ME. These are CPD-Accredited events held in London. Our conference trailer is below.

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      Date Item Source
      Nov23: Submission to APPG for ME IiMER
      Oct23: Proposed UK Government Statement on ME IiMER
      Sep23: Observations on DHSC Interim Consultation IiMER
      Sep23: Outcome measures ME research into ME IiMER
      Sep23: Update on IiMER-funded research IiMER
      Sep23: Update on Five-Year Research Plan IiMER
      Aug23: New EMERG Members/Funding Application EMERG
      Aug23: 2024 Conference Week IiMER
      July23: Diabetes Mellitus prevalence in ME IiMER
      July23: New Research Study IiMER
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      UK Centre of Excellence

      Disclaimer

Gibson Inquiry Press release 1 December 2005

Group on Scientific Research into M.E.*


Press Release
Date: 01-12-05
Re: Inquiry into progress in the scientific research of M.E.
The Group on Scientific Research into M.E.

Dr. Ian Gibson MP today publicly launches the Group on Scientific Research into M.E.

Dr. Ian Gibson MP said:
“The Chief Medical Officer’s report into CFS/ME represented an important step in Government’s recognition of the seriousness of M.E. Three years on from this report, the time is right to evaluate how much further we have come in understanding the causes of M.E., establishing a programme of research on all aspects of the condition and securing adequate investment for this research.”


Terms of Reference:
The Group on Scientific Research into M.E. has been established to assess the progress of scientific research on M.E., since the publication of the Chief Medical Officer’s Working Group Report into CFS/ME in 2002. In particular the group has been established to:
o increase public understanding of scientific research into ME/CFS
o evaluate progress in the development of a full programme of research into ME/CFS
o identify research and funding requirements in establishing the cause of ME/CFS
Starting in early 2006, hearings will take place as part of the Group’s inquiries. These hearings will take oral evidence from M.E. sufferers, leading medical experts and government officials on the progress of scientific research on the condition. The group has also written to both leading medical experts and charity organisations requesting written evidence on this subject, with a deadline for written submissions of Tuesday the 20th of December. It is the group’s aim to release a report based on this evidence following the conclusion of oral hearings. We are not inflexible in our agenda, but we wish to conclude it by Easter.
Enquiries about the group should be made in writing to Dr Ian Gibson MP, House of Commons, London, SW1A 0AA.
Unfortunately, due to administrative constraints on the group, we will not be able to respond to replies sent in return to this email address.
Ends
Editors Notes:
* M.E. is also known as Chronic Fatigue Syndrome (CFS). It is sometimes diagnosed as Post Viral Fatigue Syndrome (PVFS).

.............



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DISCLAIMER

The pages on this web site are offered as a free access information provider.
The views expressed on this web site by contributors and others do not necessarily represent those of Invest in ME Research.

No medical recommendations are given or implied.

Patients with any illness are recommended to consult their personal physician at all times.

The views expressed at the Invest in ME Research International ME Conferences and at other Invest in ME Research conferences by the presenters and delegates to the conference and any information material distributed are their own personal opinions that are not necessarily shared or endorsed by the Trustees of Invest in ME Research.

Invest in ME Research accept no responsibility for the views expressed or any subsequent action taken.

The contents of any presentation should not be deemed to be an endorsement, recommendation or approval of such content by Invest in ME Research.

The materials presented at the Invest in ME Research International ME Conferences do not constitute medical advice.

No medical recommendations are given or implied by Invest in ME Research.

Any person registering or attending the conference who may take any action or consider medical treatment or referrals should take detailed advice from their own medical practitioner. Invest in ME Research disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information contained at the conference. By registering for or attending the conference you agree that Invest in ME Research is not liable for any complications, injuries, loss or other medical problems arising from, or in connection with, the use of or reliance upon any information contained in the conference.

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Current News Items

Date Item Source
Nov23: Submission to APPG for ME IiMER
Oct23: Proposed UK Government Statement on ME IiMER
Sep23: Observations on DHSC Interim Consultation IiMER
Sep23: Outcome measures ME research into ME IiMER
Sep23: Update on IiMER-funded research IiMER
Sep23: Update on Five-Year Research Plan IiMER
Aug23: New EMERG Members/Funding Application EMERG
Aug23: 2024 Conference Week IiMER
July23: Diabetes Mellitus prevalence in ME IiMER
July23: New Research Study IiMER
June23: Post-conference week summary IiMER

Current News About Invest in ME Research Events

13th International Biomedical Research into ME Colloquium

#BRMEC13 - our thirteenth international Biomedical Research into ME Colloquium - will take place over two days on 26 -28 June 2024. More details here.

#EMERG24 European ME Research Group in person meeting

#EMERG24 - A full in person meeting for the European ME Research Group (EMERG) will take place at Hinxton Hall on the Wellcome Genome Campus near Cambridge, UK.